Advances in cancer treatment have helped reduce mortality among young cancer patients– but many treatments, including gonadotoxic chemotherapies, have the potential to reduce fertility. Many young cancer survivors report that reduced or lost fertility is the most impactful “legacy” of their cancer. Survivors face important decisions about building a family after cancer based on the resources available, including awareness of their fertility status, access to medical care and information, and the financial cost of each option. Much of the clinical research and provider recommendations guiding these decisions have been developed with non-Latino White survivors. However, Black and Latina survivors remain underserved, are less likely to be aware of their fertility status and options for having children, and may be limited by the financial toxicity of cancer. Racial and ethnic differences are also important because survivors’ family-building decisions may also be derived from their culture, where a common set of shared beliefs about the meaning of various options (and parenthood itself) can guide decision-making and predict social support for a particular pathway. Learning about culture can guide providers in how best to offer care. This highly significant study will assess experiences with oncofertility survivorship care, focused on desire for family building, culture and acculturation, stigma and impact of cancer among Black and Latina female young adult cancer survivors.
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